September 2014 Monthly Newsletter

School is back in session but we are still waiting for the cooler weather in Charlottesville! If you have your heart warrior in a preschool or school program, make sure their teachers, school nurses and administrators have all the necessary information regarding their heart. We have some forms available if you need help crafting the documents. 

One of our heart moms has generously donated her time to take pictures of our heart warriors. We will meet on Saturday, Sept. 6 at Noon at Forest Hills Park. See the event created in the UVA Heart Families FB group for more info and to RSVP. I will be using some of the pictures to create a 2015 MLH Charlottesville calendar. 

As a reminder, I have created a team to walk in this year’s AHA Heart Walk on 10/18. Here’s the link to sign up with our team. I’m currently checking out options to have t-shirts created so we all match. Also, please remember the Liberty Mills Farm A-Maize-ing Race on 10/4 that will benefit the UVA Heart Fund. They have asked our group to provide volunteers so please email me if you can help.
 Finally, if you haven’t already RSVP’d to September’s meeting with Dr. Scharf and Dr. Michael, please do so on our Facebook page.

Heart Hugs,
Lauri

April 2014 Meeting Minutes

April was a busy month for Mended Little Hearts of Charlottesville! We had a wonderful monthly support meeting on Monday, April 14. Two first responders, Chief Jones with the Charlottesville Fire Department and Jan Farruggio with the 911 Contact Center, attended our meeting and presented some valuable information. They explained to us what happens when someone calls 911 and what information would be helpful to give to the 911 dispatcher about our heart hero versus giving that information to the first responder that shows up. They both strongly encouraged contacting your local 911 center and making sure they have information regarding your heart hero in their system. They also suggested keeping a typed list of current medications as well as previous surgeries and diagnoses to give to the first responder.

On April 26, we had a great group of heart families and friends show up to walk with us in the Dogwood Festival Parade. We also had a booth that same day at the Healthy Living Expo at the Main Street Arena. Many people stopped by the booth to comment that they had seen us in the parade so I think we did a great job of increasing awareness about CHDs and spreading the word about Mended Little Hearts!

Donate

Why donate? With your help we can continue to educate the public, offer emotional support, pre and post-surgical assistance and network in an effort to further research and legislation.

Mended Little Hearts is organized as a non-profit organization under IRS section 501(C)(3). Donations are typically tax deductible.

Donations can be made out to Mended Little Hearts of Charlottesville and mailed to:

Mended Little Hearts of Charlottesville
P.O. Box 7481
Charlottesville, VA 22906

You can also donate online!

Carebags

Would you like to help us out?

Mended Little Hearts of Charlottesville needs you! We are a local chapter of a nationwide non-profit organization that provides hope, help and healing to families who have children with congenital heart defects and disease. Mended Little Hearts was founded in 2004 and is a program of The Mended Hearts, Inc. The Mended Hearts, Inc. has been helping people with adult onset heart disease for over 50 years, however MLH of Charlottesville is still in its infancy and needs the help of our community.

One of the ways that Mended Little Hearts supports families is through care bags that are given out to families when their child is in the hospital. Many newborns are emergency transported to UVa Children’s Hospital and are unprepared for their stay away from home. Parents of these children typically have no advance notice that they will need to go to a hospital out-of-town and they don’t have anything other than the clothes they are wearing and the items in their pockets and purses. Mended Little Hearts tries to provide some items that will help them by giving them care bags when they are admitted. We need donations of travel-sized toiletry items and other items such as:

♥ shampoo
♥ conditioner
♥ tissues
♥ deodorant
♥ body wash
♥ journals and pens
♥ tooth brushes
♥ hand sanitizer
♥ disposable cameras
♥ AA batteries
♥ gas cards
♥ snacks like granola bars
♥ puzzle books
♥ small stuffed animals for siblings or patient
♥ heart pillows
♥ chapstick
♥ activity books and crayons for siblings
♥ travel sized laundry detergent & dryer sheets
♥ breath mints or chewing gum
♥ playing cards
♥ antacids
♥ ear plugs

These care bags help to ease the emotional and financial burden on these families at a time when they are not near their immediate support system that would normally help them through this situation. There is incredible comfort and healing for these families in just knowing someone cares and they are not alone. Many families live several hours away and live at the hospital or Ronald McDonald house nearby, it is nice for them to have travel sized items and comfort items to help them adjust and settle into a strange place during a hard time.

If you would like to donate any of these items, please contact us at CharlottesvilleVA@mendedlittlehearts.org. Your donation are tax-deductible and it can help give families hope.

Thank you so much!

American Medical ID

American Medical ID recently partnered with Mended Hearts, Inc and Mended Little Hearts. They are offering 10% off of all MLH Medical Alert IDs and accessories. They are also donating 10% to Mended Little Hearts! So not only do we get a discount on an important tool for our children and adult CHD survivors, we can help raise money for Mended Little Hearts while raising awareness.

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American Medical ID Click on the image above to go to the Mended Little Heart page for American Medical ID.