Three days after Isla was born, our pediatrician discovered a heart murmur. The news of Isla’s murmur was a complete shock since there were no signs of heart issues during pregnancy. Over the next several weeks, Isla’s life and ours were turned upside down. Isla was eventually diagnosed with Tetralogy of Fallot. She had corrective surgery at 5 ½ weeks old. Looking back, the first six weeks of Isla’s life seem like a blur. Everything happened so fast, which turned out to be a blessing in disguise. We had very little time to dwell on her diagnosis. Thankfully, Isla’s surgery was successful, but she will never be truly out of the woods. The good news is that Isla does not know she has a congenital heart defect. From the moment she was born, Isla has always been alert, wanting to be part of the action. She loves to eat and will let you know when she wants something. She is content to hang out, but also likes to move around. She has jumped in her exersaucer and crawled over obstacles to get a toy. She has even tried to tackle her older brother and take toys away from him.
Isla was what is called a pink tet. Even though she had a large hole in her heart with her aorta overriding the hole, and significant pulmonary stenosis, her heart managed to keep well oxygenated blood circulating through her body. The surgery closed the hole which also aligned the aorta correctly above the left ventricle. Her valve was opened up to decrease the amount of pulmonary stenosis and allow blood to flow to her lungs a bit more easily. Isla continues to be seen by a cardiologist to monitor the pulmonary stenosis. It could get worse again over time requiring more intervention. In the meantime, Isla continues to not be aware of her heart defect, something her family is extremely grateful for.